Saturday, May 23, 2009

PH Walk/Run for Research- A Victory !

The Piedmont PH support group had its annual Walk/Run for PH Research on May 17TH.
This is my group and doing a walk is something I have wanted to do for a long time.
I did it ! I walked 5k for PH Research .I am so excited even though it was a week ago.We had good support with runners and walkers alike and it was raining all day.We were able to raise 10,000.00 which was our goal.All in all it was a victorious day for everyone.The walk was not as easy as I hoped.There were steep hills that wanted to stop me.With patience and perseverance I prevailed !!!
Awareness and Advocacy for our disease is part of my daily life.I have been busy contacting our Congress members about the new bill H.R. 1030.Hopefully we will have our first official meeting with a Congressman this month.I am excited and full of hope.
I have hope that this bill will pass and we will have more support for research and awareness.I have hope for myself.I just had my 21St anniversary with this illness.At one time I never thought I would live this long.Today there is hope for me,for you and everyone else in this great big world we live in.I will continue with the awareness and advocacy work I do.In the meantime and in between time I will walk !
Our support group has big plans this year.We are having a golf tournament in September and possibly a yard sale with proceeds going to PHA Conference Scholarships.We have our work cut out for us but we are a great team.With a fantastic leader.Cindy I love ya girly !!! You rock .
I pray that this Memorial Day Weekend is full of joy for all.