Wednesday, December 17, 2008


I will start anew
I will make amends and I will make quite certain that the story ends ,
on a note of hope
on a strong amen
and I'll thank the world and remember when I was able to begin again!
My favorite Christmas Story and favorite quote !
I am going to watch my scrooge now and I know I will feel the gratitude I always feel after
watching the movie.It's a great story of transformation,renewal and hope for the future .
AMEN !!!

Sunday, December 7, 2008

Christmas Time is Here

I know I haven't posted for a few days.I have been busy getting ready for Christmas.I am still writing out cards and getting the wrapping done.All should be set tomorrow.We were going to decorate today but neither one of us was really feeling up to it.It was cold here and the thought of being out in this weather was not appealing.
My support group leader and I have been talking about New Year's resolutions for our support group.There is alot we want to do and all of it has to do with awareness in one way or another.Since I am the advocacy chair I am already making an agenda of where I would like us to start i the new year with the new congress.We shall see.
That's all folks !!!

Monday, December 1, 2008

Awareness Month is Over but Awareness Goes On

Now that November is officially over.I am thrilled to say that many ,many ph'ers had great success .PH was in the news,newspapers,blogs ,websites,chat rooms,Capitol Hill.It's amazing to me that so many of us that are ill can achieve so much.We are such a strong-both mentally and spiritually-group of people.It really is astonishing.I am proud to be a part of this wonderful group of go-getter's.
What's next? Awareness and Advocacy.H.R. 6568 did not pass this year.I am already making an agenda for meetings with reps and senators in 2009.I have also talked to a couple of the support group members about meeting with our new Governor.Time will tell.So we march forward,together hand in hand,in peace and love for each other.With hope now leading us into action.We will all see changes made in the area of Pulmonary Hypertension.Science is taking us into new frontiers and our spirits are letting us go along.Oh the miracles that I know will happen.I am excited about the future for me,for you and for those that will find out they have PH in the future.They will have an even better chance....Thank God for that !