Wednesday, November 18, 2009

Pulmonary Hypertension Awareness In Davidson County NC

I have waited a few days to post this.The truth is I really want to be in DC right now with the patients for advocacy day,but I know we don't always get what we want.I was however able to speak to an editor of a free magazine that is distributed to over 100 locations through out the county I live in.It is called Davidson Focus.They used my story on Pulmonary Arterial Hypertension with some pics from our learning day last week. There will be 22,000 issues of this magazine given to all the hospital,doctors offices,herbal and vitamin shops,and physical therapy centers,etc..Hopefully one person will read it and learn something .
Here is the link to the pdf page : http://dcfocusmagazine.com/focus.pdf
I am on page 20 I believe.if this does not work then go to :
http://dcfocusmagazine.com/neighborhoodspotlight.html
Click on see all stories and it will let you download the story as a pdf file.I hope this works.
Have a great day.Happy Awareness Month !!!
Peace Phamily

7 comments:

Nancy said...

Congratulations on the great article. You have done so much to raise PH Awareness this year. Nice Job!

Karen said...

Hi, I'm Karen. Since my mother was diagnosed with Pulmonary Arterial Hypertension four months ago, I've decided to make a blog to raise awareness of PAH. Perhaps you'd consider linking to my blog - it's http://hypertension-pulmonary.blogspot.com/

Jackie said...

Hello Diane,

Next month, a group of medical professionals will go to great heights to better empathize with their patients. Dr. Robert Frantz, Director of the Mayo Pulmonary Hypertension Clinic , Dr. Ray Benza and Jessica Lazar, Allegheny General Hospital, plan to climb Mount Kilimanjaro, the highest point in Africa, to raise awareness about Pulmonary Hypertension, a disease that affects approximately 100,000 people in the U.S.

One of the keys to early diagnosis and extending life of Pulmonary Hypertension patients is raising awareness about the disease, which the doctors hope to ultimately do with their trek, named Path to a Cure.

As you are aware, symptoms of Pulmonary Hypertension include shortness of breath, fatigue, dizziness and chest pains. As climbers reach extreme altitudes (above 10,000 feet) their lungs will start to constrict due to decreased oxygen; imitating the symptoms felt by those living with Pulmonary Hypertension.

Along with better understanding their patients’ daily struggles, Dr. Benza, Dr. Frantz and Jessica hope to raise $100,000 to help support research and patient programs for the Pulmonary Hypertension Association (PHA), a non-profit organization started by those with Pulmonary Hypertension. During the climb, the PHA plans to organize more than two dozen unity walks around the United States.

I will be in touch to see if you are interested in learning more about the Path to a Cure or if you would like to speak with any of the climbers. In the meantime, please do not hesitate in contacting me.

Thanks and Best,
Jackie Welch

jwelch@webershandwick.com

Jackie said...

Hello,

You may recall me contacting you a few weeks ago surrounding the Path to a Cure climb, in which, Dr. Robert Frantz, Director of the Mayo Pulmonary Hypertension Clinic , Dr. Ray Benza and Jessica Lazar, Allegheny General Hospital, plan to climb Mount Kilimanjaro, the highest point in Africa, to raise awareness about Pulmonary Hypertension.

Along with better understanding their patients’ daily struggles, Dr. Benza, Dr. Frantz and Jessica hope to raise $100,000 to help support research and patient programs for the Pulmonary Hypertension Association (PHA).

During the climb, which will span from February 19 –February 26, the doctors will be available for satellite phone interviews throughout their hike. We would love for you to speak with the climbers during this exciting time.

I will be in touch to see if you are interested in learning more about the Path to a Cure or if you would like to speak with any of the climbers. In the meantime, please do not hesitate in contacting me.

Thanks and Best,
Jackie Welch

415-262-5980

Bruce said...

Applauding your efforts, Diane! Please keep your work going. I, too, suffer from PAH and am encouraged by your bravery and strength. All the best! Bruce, Birmingham, AL

Nancy said...

Hi Diane,

Thanks for asking about me and for leaving a comment on my blog. I was unable to answer your comment because it was listed as "no-reply."

I hope you are doing well.

Unknown said...

It's my hope that this note has found you grinning so large a Cheshire cat would be green with envy.

I am reaching out to you hoping that you will lend your support and the power of your network to the following campaign, which benefits the Pulmonary Hypertension Association's mission to find a cure.

My Lady, diagnosed with PH in March of 2013, was recently the subject of an article titled, The Challenges of Chloe Temtchine for the Huffington Post. Here's a link: http://www.huffingtonpost.com/annette-insdorf/chloe-temtchine_b_4246594.html

Additionally, we just began a video campaign in collaboration with the PHA. This is the first video: http://bit.ly/Mcn4ch

On March 10th she will be the subject of Caring Voice Coalition's magazine monthly issue.

On March 29th, she will be performing for more then 3000 people directly afflicted directly or indirectly by PH.

Thereafter, she will be the subject of Pathlight, the quarterly issue of the Pulmonary Hypertension Association as well as a performance at the International Conference in June.


It's my intention to align with all those speaking about PH online and leverage their network to help us shine a light on this campaign, which will raise the much needed awareness for PH.

Kindest regards and...

--
May Your Life Be Extraordinary,

Marvin V Acuna